Joe, diagnosed with PNH at 24 years old, training for mixed martial arts

JOE
LIVING WITH PNH

REAL STORIES

Real Stories of Living With PNH

Bill, diagnosed with PNH at 28 years old, with his wife

Bill

Diagnosed with PNH at 28 years old

In 1985, Bill had already been living with aplastic anemia for 10 years when chronic bouts of fatigue during exercise landed him in the hospital, where he was diagnosed with PNH.

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Joe, diagnosed with PNH at 24 years old, with his fiancée and child

Joe

Diagnosed with PNH at 24 years old

Joe was completing his Master’s degree, engaged to be married, and on his way to becoming a professional mixed martial arts competitor when the symptoms began: unexplained fatigue, dark urine, back and stomach pain.

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Ruthie, diagnosed with PNH at 28 years old, with her husband

Ruthie

Diagnosed with PNH at 28 years old

Ruthie was a typical college senior at the University of Georgia in 1996 when she began experiencing chronic fatigue and frequent headaches.

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Victor, diagnosed with PNH at 27 years old, with his fiancée and child

Victor

Diagnosed with PNH at 27 years old

Victor worked in the concert security industry and was planning a future with his fiancé when he started experiencing unexplained bruising, fatigue and abdominal pain.

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